Sunday, February 23, 2014
Saturday, February 22, 2014
Friday, February 21, 2014
Wednesday, February 19, 2014
Sad status update will stay at the top until I find a solution please scroll for new pics
Okay Sad status update: Its all gone wrong since January.
Many of you know I have a genetic condition, EDS. Many of you know that I struggle with this condition, and its many and varied effects, eg: Dislocation of Vocal chords, Tearing of the Hyaline cartilage between the ribs causing my ribs to be in 6 seperate pieces, etc.
Well unfortunatly this next manifestation of my EDS means that I am no longer able to spend more than 30 mins per day looking at any type of web page. My EDs has now affected my sight, the muscles adjusting my vision are not responding after 30 mins, and the difference between wearing glasses and not wearing Glasses at this point is negligable. This affects my ability to drive, read, watch tv, everything especially being Shortsighted!
So having had confirmation from the GP that the steps we tried are not working I am having to withdraw from a lot of online activities.
No Games, No blogs, no competitions, limited access to forums and groups.
I have to preserve my vision for things like emails, and shopping. And go back to relying on hubby being able to drive most of the time as I dont trust my eyesight. Or until the kids pass their Driving Tests and can come with me, and swap over if my eyesight goes.
Until some smarty pants out there comes up with a working soloution to my various EDS manifestations (Pretty Please God, I wouldn't mind if someone came up with something!!)
I am still going to craft, but all you will recieve from me now are pictures, no details on how I did it, sorry but I cant affford to loose the little response I have left in my vision. I try to keep up by my mobile, easier as its not so white based, which is the area of concern, so will keep in touch via FB, but all else has to go, xxx
Many of you know I have a genetic condition, EDS. Many of you know that I struggle with this condition, and its many and varied effects, eg: Dislocation of Vocal chords, Tearing of the Hyaline cartilage between the ribs causing my ribs to be in 6 seperate pieces, etc.
Well unfortunatly this next manifestation of my EDS means that I am no longer able to spend more than 30 mins per day looking at any type of web page. My EDs has now affected my sight, the muscles adjusting my vision are not responding after 30 mins, and the difference between wearing glasses and not wearing Glasses at this point is negligable. This affects my ability to drive, read, watch tv, everything especially being Shortsighted!
So having had confirmation from the GP that the steps we tried are not working I am having to withdraw from a lot of online activities.
No Games, No blogs, no competitions, limited access to forums and groups.
I have to preserve my vision for things like emails, and shopping. And go back to relying on hubby being able to drive most of the time as I dont trust my eyesight. Or until the kids pass their Driving Tests and can come with me, and swap over if my eyesight goes.
Until some smarty pants out there comes up with a working soloution to my various EDS manifestations (Pretty Please God, I wouldn't mind if someone came up with something!!)
I am still going to craft, but all you will recieve from me now are pictures, no details on how I did it, sorry but I cant affford to loose the little response I have left in my vision. I try to keep up by my mobile, easier as its not so white based, which is the area of concern, so will keep in touch via FB, but all else has to go, xxx
Subscribe to:
Posts (Atom)