tag:blogger.com,1999:blog-8964959648647549538.post4997457252468195923..comments2023-07-04T11:06:02.069+01:00Comments on Lou P's craft creations: A different kind of Postl00pyscraftcreationshttp://www.blogger.com/profile/05358837196757919673noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-8964959648647549538.post-48066876641295746682012-02-29T23:48:10.534+00:002012-02-29T23:48:10.534+00:00Dear Lou,
I was really touched by your post! I hav...Dear Lou,<br />I was really touched by your post! I have a dear friend who suffers from many disabling illnesses but despite that she is always there for me. I suffer from depression and though it doesn't hurt much physically, mentally the pain is unbearable. But compared to my friend and yourself my pain is nothing. Though I don't know you very well, you seem to be a lot like my friend. Brave, caring, encouraging, self sacrificing. So your friends should appreciate you not for what you are physically but for what kind of person you are from the heart. I love my friend and I'm sure your friends will love you too for who you are.<br />Love Pearl xAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-31133054846694641662012-02-29T22:25:48.260+00:002012-02-29T22:25:48.260+00:00Well Im in tears reading this Lou because it remin...Well Im in tears reading this Lou because it reminds me that you are so much braver than I am-Its just 2 years since they finally diagnosed me and as you know I still dont talk openly about it.<br />I think of you on my 'dark'days and your determination keeps me going mate!!!<br />So,I think your school friends should see exactly what you are- A funny,smart,determined lady who has achieved much,and they should feel blessed for knowing you!!!<br />You keep your chin up and I will do the same, ok? xxxxxMaria Moorhouse https://www.blogger.com/profile/16644740591073895521noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-72422633789483908922012-02-29T21:11:37.807+00:002012-02-29T21:11:37.807+00:00Oh hunny, you made me cry... Not with sympathy but...Oh hunny, you made me cry... Not with sympathy but with understanding, My world is generally the same, in 2001 i was diagnosed with septic arthritus, Psoas abcess and manic Depression due to a bad attack where i was left in a car-park and ended up in a coma for 2 weeks, i can only walk with a crutch, have 2 amazing children who are fabulous but miss out on so much, i NEVER go out unless i really have too, i live in constant fear and pain, and last month a disability nurse for the benifits agency told me i could go back to work, oh i am disabled enough to get top rates mobility and care but not disabled enough that i cant work, i am appealing, she constantly lied on my assesment saying i had full mobility, ermm i bloody wish.. My back is that arched i feel 90, children started to pick on my girls because "" i walk funny"", i dont go to their school now, their dad goes, i like yourself just wish people understood and didnt make snide comments, i am lucky enough to have some fab friends and family but wish my life was like it used to be, so i totally feel for you hunny and i am ALWAYS here if you need to talk,<br />hugz<br />Kenzie xxKrafty Hugzz Kenzi xhttps://www.blogger.com/profile/02600954153585544614noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-44298965724231133512012-02-29T19:42:09.837+00:002012-02-29T19:42:09.837+00:00Oh my goodness Lou, you are a true inspiration. I...Oh my goodness Lou, you are a true inspiration. I will admit, I have never heard of this illness so I can just imagine the fight you had on your hands to persuade doctors that it wasnt some form of Hypochondria or attention seeking. I think it is appalling how you were treated by the medical profession. And dont worry about your reunion, if they are true friends they will see you as the same wonderful person you were back then. The stick and the splints are merely the body make-up you have to wear. Big hugs, Lee xCrafty Loopshttps://www.blogger.com/profile/02554012964504742615noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-32807870052100433912012-02-29T10:48:46.765+00:002012-02-29T10:48:46.765+00:00Big Hugs to you Lou.... we never know what is goi...Big Hugs to you Lou.... we never know what is going on behind the blog doors..... thank you for sharing! <br />I've left you a little something over on my blog if you want to toodle over and take a peak!<br />xxxxxxDebshttps://www.blogger.com/profile/07858959798844773070noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-24336534700507089132012-02-28T16:11:08.002+00:002012-02-28T16:11:08.002+00:00Huge hugs, Lou. It's a massive reminder that ...Huge hugs, Lou. It's a massive reminder that there are so many people out there who are suffering, mainly through lack of any form of diagnosis. Too many people have their problems swept under the carpet. I'm glad that at least you know what's wrong now after all the years of wondering. And thank you for telling me what Ehlers-Danlos is. You've said it before but I didn't have a clue. <br />xxxxAlyxhttps://www.blogger.com/profile/15068729875457310222noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-81637577531216241532012-02-28T10:22:20.703+00:002012-02-28T10:22:20.703+00:00My Dear sweet friend Lou, what an emotive piece to...My Dear sweet friend Lou, what an emotive piece to write and I am nearly in tears by how amazingly brave and strong person you are! I knew of your condition by talking to you and spending time with you! <br /><br />I hope your school friends will see "you" as you are a very sweet, honest and loving person.<br /><br />Sending you lots of gentle hugs.<br />Linda xxxLinda Simpsonhttps://www.blogger.com/profile/15180736604435426888noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-20522089055965747552012-02-28T08:11:46.772+00:002012-02-28T08:11:46.772+00:00Mornin' Lou, I did try to email you yesterday ...Mornin' Lou, I did try to email you yesterday after reading your post...I guess I went over the 300... and it just cancelled itself out. I live with conditions I wouldn't dare put into print for fear of rejection so I am so proud of what you have achieved and how you have written about your condition. I hope this is being a good week for you. sue xapplejack cards by suehttps://www.blogger.com/profile/00239238564374616484noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-51585654960333513072012-02-28T08:05:04.778+00:002012-02-28T08:05:04.778+00:00Thank-you for sharing this, it must of been hard.
...Thank-you for sharing this, it must of been hard.<br />I am disabled and in pain due to my MS (multiple sclerosis). I look at this disease changing my direction rather than stopping me. I have stumbled upon the wonderful world of creating online and have made many new friends.<br />I too was active then Bang! nO longer able to anything, even walking is a challenge but I like challenges. :) I now will educate myself on this disease as I know very little about it.<br /><br />Thankyou once again for sharing this.<br /><br />Clare ( http://www.clarecards.blogspot.com/Clarehttps://www.blogger.com/profile/16569992348809825255noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-19504434304742381732012-02-28T08:04:41.968+00:002012-02-28T08:04:41.968+00:00Thank-you for sharing this, it must of been hard.
...Thank-you for sharing this, it must of been hard.<br />I am disabled and in pain due to my MS (multiple sclerosis). I look at this disease changing my direction rather than stopping me. I have stumbled upon the wonderful world of creating online and have made many new friends.<br />I too was active then Bang! nO longer able to anything, even walking is a challenge but I like challenges. :) I now will educate myself on this disease as I know very little about it.<br /><br />Thankyou once again for sharing this.<br /><br />Clare ( http://www.clarecards.blogspot.com/Clarehttps://www.blogger.com/profile/16569992348809825255noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-89433131840412888232012-02-28T08:04:18.061+00:002012-02-28T08:04:18.061+00:00Thank-you for sharing this, it must of been hard.
...Thank-you for sharing this, it must of been hard.<br />I am disabled and in pain due to my MS (multiple sclerosis). I look at this disease changing my direction rather than stopping me. I have stumbled upon the wonderful world of creating online and have made many new friends.<br />I too was active then Bang! nO longer able to anything, even walking is a challenge but I like challenges. :) I now will educate myself on this disease as I know very little about it.<br /><br />Thankyou once again for sharing this.<br /><br />Clare ( http://www.clarecards.blogspot.com/Clarehttps://www.blogger.com/profile/16569992348809825255noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-55068178409297647042012-02-28T07:01:01.827+00:002012-02-28T07:01:01.827+00:00I know what you are talking about. During the last...I know what you are talking about. During the last 25 years I can't remember one only day without pain. I live with painkillers in my pocket. Mine isn't a major disease, but my back and neck are always hurtingbecause of my bad Scoliosis, I suffer from Endometriosis and Cervical/Migaine. It's not that I cannot do things... I don't surrender to pain.But sometimes it's very hard to get up from bed and go to work. Then I think about a friend who died recently. She had Multiple Sclerosis for 30 years.... There's always someone feeling worse. And tis gives me the strenght for going on.<br />I'm going to check out for your disease. I've never heard about it before. You must be a very strong person, dear. I hope you have a less painful day, today. Hugs!Anonymoushttps://www.blogger.com/profile/11365682628904153667noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-87178519910051131892012-02-27T22:11:51.444+00:002012-02-27T22:11:51.444+00:00i have read your post...i think you are so brave n...i have read your post...i think you are so brave not only to have pushed the publish button but just to let others know that not all thngs are as they seem i suffer my aches pains every day i nearlly lost my life in March 2011 i struggle to work i fid it hard to cope and yet no one knows how i feel..as nothing of my illness shows on the outside but i have nothing wrong with me compared to you and yours but yet its not sympathy i feel but empathy for you..but who is this very brave lady so its just pure admiration i feel towards one very brave..clever human being..what will you friends see..if they are your friends they will see you if not then thats there problem..does that sound harsh...you are inspiration to others..you are the talking truth of a unseen illness..you are brave ..you are loving...if i or you had one wish..well what would we wish for?<br />love and gentle hugs sassyxAnonymoushttps://www.blogger.com/profile/04610220920106321729noreply@blogger.comtag:blogger.com,1999:blog-8964959648647549538.post-39520319666229246182012-02-27T22:09:11.732+00:002012-02-27T22:09:11.732+00:00What an amazing emotive statement and how very bra...What an amazing emotive statement and how very brave of you to write so movingly on your blog. It is all new information to me as I have never before heard of Hypermobility or Ehlers-Danlos and I am so moved by your strength. <br />I can only wish you good luck for your treatment and day to day life. I cannot begin to understand all you go through but hope somehow, someway it can be easier for you.<br />With love <br />JoZarty xJoZart Designshttps://www.blogger.com/profile/15197690337080094062noreply@blogger.com